An assessment of the impact of cerebral palsy on children's quality of life

DAŞKAPAN, Arzu; Tüzün, Emine Handan; EKER, LEVENT

An assessment of the impact of cerebral palsy on children's quality of life

Emine Handan TÜZÜN, (Başkent Üniversitesi, Tıp Fakültesi, Fiziksel Tıp ve Rehabilitasyon Anabilim Dalı, Ankara, Türkiye)

Levent EKER, (Sağlık Bakanlığı, Ankara, Türkiye)

Arzu DAŞKAPAN (Başkent Üniversitesi, Tıp Fakültesi, Fiziksel Tıp ve Rehabilitasyon Anabilim Dalı, Ankara, Türkiye)

Fizyoterapi Rehabilitasyon

5 0

Yıl: 2004 Cilt: 15 Sayı: 1 Sayfa Aralığı: 3 - 8 Metin Dili: Türkçe İndeks Tarihi: 29-07-2022

An assessment of the impact of cerebral palsy on children's quality of life

Öz:

Amaç: Bu çalışmanın amacı, serebral paralizinin çocukların yaşam kalitesi üzerine olan etkisini değerlendirmek ve hastalığın şiddeti ile yaşam kalitesi arasındaki ilişkiyi incelemekti. Yöntem ve gereç: Yaşları 5-12 yıl arasında değişen 45 serebral paralizili ve 64 sağlıklı çocuk üzerinde karşılaştırmalı bir çalışma yapıldı. Sağlıkla ilgili yaşam kalitesini değerlendirmek amacıyla Çocuk Sağlık Anketi (CHQ-PF50) kullanıldı. Serebral paralizi şiddeti Kaba Motor Fonksiyon Sınıflama Sistemi (GMFCS) ile değerlendirildi. Sonuçlar: Gruplar yaş ve cinsiyet yönünden dengedeydi. Serebral paralizili olguların çoğu (% 66.7) GMFCS' ne göre IV. veya V. seviyedeydi. Serebral paralizili olgularda eşlik eden tıbbi problemler daha sıktı. Serebral paralizi ağrı ve mental sağlık dışındaki tüm ölçeklerde yaşam kalitesinin anlamlı şekilde kötüleşmesine yol açmıştı (p<0.01). Korelasyon analizleri, GMFCS seviyesi artarken CHQ-PF50' nin fiziksel fonksiyon, sosyal-fiziksel rol güçlüğü ve sosyal / emosyonel / davranış kısıtlanmaları ölçeklerindeki puanların azaldığını gösterdi. Tartışma: Çalışmamızın sonuçları, serebral paralizinin bu hastalıktan etkilenen çocukların yaşam kalitesi üzerine çok büyük olumsuz etkilerinin olduğunu gösterdi. Motor bozukluk şiddeti sadece fiziksel sağlık ile değil, aynı zamanda psikolojik sağlıkla da ilişkiliydi. Bu çocukların yaşam kalitelerini iyileştirmek için disiplinler arası bir yaklaşıma gereksinim vardır.

Anahtar Kelime: Beyin felci Hastalık ciddiyet indeksi Çocuk Anketler Yaşam kalitesi

Konular: Genel ve Dahili Tıp Rehabilitasyon

Serebral paralizinin çocukların yaşam kalitesi üzerine olan etkisinin değerlendirilmesi

Öz:

Purpose: The aim of the present study was to evaluate the impact of cerebral palsy on children's health-related quality of life (HRQoL) and explore the association between the severity of disease and perception of HRQoL. Material and methods: A comparative study was conducted on 45 children with CP and 64 healthy children aged 5-12 years. Child Health Questionnaire (CHQ-PF50) was used to evaluate HRQoL. The severity of the CP was assessed by Gross Motor Function Classification System (GMFCS). Results: Groups were comparative with respect to age and gender. Most of the subjects (66.7%) with CP were classified as GMFCS Level IV or V. Associated medical problems were more frequent in subjects with CP. Cerebral palsy led to significantly worse quality of life in all domains with the exception bodily pain and mental health scales (p<0.01). Correlation analyses showed that the scores on the physical functioning, role / social-physical limitations, and role / social, emotional / behavioral limitations scales of the CHQ-PF 50 decreased while the GMFCS level increased. Conclusion: Our results showed that cerebral palsy has a tremendous negative impact on quality of life of children. The severity of the motor impairment is associated with not only physical health but also psychological health. Interdisciplinary team approach is needed to improve quality of life of these children.

Anahtar Kelime: Child Questionnaires Quality of Life Cerebral Palsy Severity of Illness Index

Konular: Genel ve Dahili Tıp Rehabilitasyon

Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık

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APA	Tüzün E, EKER L, DAŞKAPAN A (2004). An assessment of the impact of cerebral palsy on children's quality of life. , 3 - 8.
Chicago	Tüzün Emine Handan,EKER LEVENT,DAŞKAPAN Arzu An assessment of the impact of cerebral palsy on children's quality of life. (2004): 3 - 8.
MLA	Tüzün Emine Handan,EKER LEVENT,DAŞKAPAN Arzu An assessment of the impact of cerebral palsy on children's quality of life. , 2004, ss.3 - 8.
AMA	Tüzün E,EKER L,DAŞKAPAN A An assessment of the impact of cerebral palsy on children's quality of life. . 2004; 3 - 8.
Vancouver	Tüzün E,EKER L,DAŞKAPAN A An assessment of the impact of cerebral palsy on children's quality of life. . 2004; 3 - 8.
IEEE	Tüzün E,EKER L,DAŞKAPAN A "An assessment of the impact of cerebral palsy on children's quality of life." , ss.3 - 8, 2004.
ISNAD	Tüzün, Emine Handan vd. "An assessment of the impact of cerebral palsy on children's quality of life". (2004), 3-8.

APA	Tüzün E, EKER L, DAŞKAPAN A (2004). An assessment of the impact of cerebral palsy on children's quality of life. Fizyoterapi Rehabilitasyon, 15(1), 3 - 8.
Chicago	Tüzün Emine Handan,EKER LEVENT,DAŞKAPAN Arzu An assessment of the impact of cerebral palsy on children's quality of life. Fizyoterapi Rehabilitasyon 15, no.1 (2004): 3 - 8.
MLA	Tüzün Emine Handan,EKER LEVENT,DAŞKAPAN Arzu An assessment of the impact of cerebral palsy on children's quality of life. Fizyoterapi Rehabilitasyon, vol.15, no.1, 2004, ss.3 - 8.
AMA	Tüzün E,EKER L,DAŞKAPAN A An assessment of the impact of cerebral palsy on children's quality of life. Fizyoterapi Rehabilitasyon. 2004; 15(1): 3 - 8.
Vancouver	Tüzün E,EKER L,DAŞKAPAN A An assessment of the impact of cerebral palsy on children's quality of life. Fizyoterapi Rehabilitasyon. 2004; 15(1): 3 - 8.
IEEE	Tüzün E,EKER L,DAŞKAPAN A "An assessment of the impact of cerebral palsy on children's quality of life." Fizyoterapi Rehabilitasyon, 15, ss.3 - 8, 2004.
ISNAD	Tüzün, Emine Handan vd. "An assessment of the impact of cerebral palsy on children's quality of life". Fizyoterapi Rehabilitasyon 15/1 (2004), 3-8.