Yıl: 2021 Cilt: 21 Sayı: 3 Sayfa Aralığı: 231 - 236 Metin Dili: İngilizce DOI: 10.26650/jchild.2021.1000170 İndeks Tarihi: 07-09-2022

Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study

Öz:
Objective: Patient- and family-centered care (PFCC) involves the engagement of both the patients and their families, considering them as an essential member of the healthcare team. The aim of this study was to evaluate PFCC experience of hospitalized children’s parents in our hospital, assess current areas of strength and identify areas for growth for future improvement. Material and Methods: The inclusion criteria for the study were parents of children who were hospitalized for at least three consecutive days. The data of 27 mothers, who were the child’s primary caregiver in the hospital, were collected through face-to-face interviews. Children using immunosuppressive treatment were excluded from the study. Interviews lasted between 20 and 30 minutes. Data were analyzed using thematic framework analysis. Results: Mothers reported both positive and negative experiences during their hospitalization period. One of the main findings of our current study was that Turkish parents usually do not prefer to take an active role during the decision-making process. However, they do expect to be fully informed about the disease, diagnostic procedures, treatment, and expected complications. Conclusion: It is important to emphasize the importance of comprehensive implementation of PFCC for better healthcare outcomes. Recommendation includes offering communication skills training and education to healthcare providers and starting initiatives to improve the hospitals’ environment.
Anahtar Kelime: Family Child Patient Care Decision Making Health Personnel Qualitative Research

Türkiye’deki Bir Çocuk Kliniğinde Çocuk ve Aile Merkezli Bakımın Değerlendirilmesi: Niteliksel Çalışma

Öz:
Amaç: Hasta ve aile merkezli bakım hizmeti hem hastaların hem de bakım veren ebeveynlerin sağlık ekibinin önemli bir parçası olarak kabul edilme- sini içerir. Bu çalışmanın amacı, hastanemizde yatan çocukların ebeveyn- lerinin hasta ve aile merkezli bakım hizmetleriyle ilişkili deneyimlerini değerlendirmek, olumlu kısımları saptamak ve geliştirilme ihtiyacı olan alanları belirlemektir. Gereç ve Yöntemler: En az üç gün hastanede yatışı olan çocukların ebe- veynleri çalışmaya dahil edilmiştir. Annelerin çocuklarının öncelikli bakım verenleri olması nedeniyle 27 çocuğun anneleri ile yüz yüze görüşme metodu kullanılarak veriler elde edilmiştir. İmmunsupresif kullanan çocuklar çalışma dışında bırakılmıştır. Görüşmeler oratalama 20-30 dakika sürmüştür. Görüşme çıktıları analiz edilip, tema rehberi belirlenmiştir. Bulgular: Anneler tarafında yatışları süresince olumlu ve olumsuz dene- yimler bildirilmiştir. Ana bulgulardan biri; ülkemizdeki ebeveynlerin karar verme sürecinde aktif rol almayı tercih etmemesidir. Bununla birlikte ebeveynler mevcut hastalık, tanı, tedavi prosedürleri ve olası komplikas- yonlarla ilgili bilgilendirilmek istedikleri belirtilmiştir. Sonuç: Daha iyi sağlık sonuçları elde edebilmek adına hasta ve aile mer- kezli bakım hizmetlerinin etkin bir şekilde uygulanması çok önemlidir. Sağlık çalışanlarına iletişim becerileri konusunda eğitim vermek ve hasta- ne ortamını iyileştirmeye yönelik girişimlerde bulunulması önerilmekte- dir.
Anahtar Kelime: Aile Çocuk Hasta bakımı Karar verme Sağlık çalışan- ları Niteliksel araştırma

Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık
  • 1. Committee on hospital care and institute for patient- and family-centered care. Patient- and family-centered care and the pediatricians role. Pediatrics 2012;129:394–404.
  • 2. Mikkelsen G, Frederiksen K. Family-centred care of children in hospital - a concept analysis. J Adv Nurs 2011;67(5):1152-62.
  • 3. Melnyk BM, Feinstein NF, Alpert-Gillis L, et al. Reducing premature infants’ length of stay and improving parents’ mental health outcomes with the Creating Opportunities for Parent Empowerment (COPE) neonatal intensive care unit program: a randomized, controlled trial. Pediatrics 2006;118(5):e1414-e1427.
  • 4. De Bernardo G, Svelto M, Giordano M, Sordino D, Riccitelli M. Supporting parents in taking care of their infants admitted to a neonatal intensive care unit: a prospective cohort pilot study. Ital J Pediatr 2017;43(1):36.
  • 5. Trzeciak S, Gaughan JP, Bosire J, Mazzarelli AJ. Association Between Medicare Summary Star Ratings for Patient Experience and Clinical Outcomes in US Hospitals. J Patient Exp 2016;3(1):6-9.
  • 6. Pais MS, Bissell S. Overview and implementation of the UN Convention on the Rights of the Child. Lancet 2006;367(9511):689- 90.
  • 7. Uchitel J, Alden E, Bhutta ZA, Goldhagen J, Narayan AP, Raman S, et al. The Rights of Children for Optimal Development and Nurturing Care. Pediatrics 2019;144(6):e20190487.
  • 8. Toomey SL, Chien AT, Elliott MN, Ratner J, Schuster MA. Disparities in unmet need for care coordination: the national survey of children’s health. Pediatrics 2013;131(2):217-24.
  • 9. Tosun A, Güdücü Tüfekci F. Examination of family-centered care practices in pediatric clinics [Çocuk kliniklerinde aile merkezli bakim uygulamalarinin incelenmesi.] Journal of Anatolia Nursing and Health Sciences 2015;18(2).
  • 10. Oktay H. Examining the care given in the pediatric wards of a university hospital in terms of family-centered care and determining the views of the mothers. [Bir üniversite hastanesinin çocuk servislerinde verilen bakımın aile merkezli bakım yönünden incelenmesi ve anne görüşlerinin belirlenmesi.] Hacettepe University Faculty of Health Sciences Nursing Journal 2009;16(1):11-24.
  • 11. National Center for Family-Centered Care. Family-Centered Care for Children with Special Health Care Needs. (1989). Bethesda, MD: Association for the Care of Children’s Health.
  • 12. Brabers AE, Rademakers JJ, Groenewegen PP, van Dijk L, de Jong JD. What role does health literacy play in patients’ involvement in medical decision-making? PLoS One 2017;12(3):e0173316.
  • 13. Anderson WG, Arnold RM, Angus DC, Bryce CL. Passive decision- making preference is associated with anxiety and depression in relatives of patients in the intensive care unit. J Crit Care 2009;24(2):249-54.
  • 14. Zandbelt LC, Smets EM, Oort FJ, Godfried MH, de Haes HC. Patient participation in the medical specialist encounter: does physicians’ patient-centered communication matter? Patient Educ Couns 2007;65:396-406.
  • 15. Street RL Jr, Gordon HS, Ward MM, Krupat E, Kravitz RL. Patient participation in medical consultations: why some patients are more involved than others. Med Care 2005;43:960-9.
  • 16. Ammentorp J, Rasmussen AM, Nørgaard B, Kirketerp E, Kofoed PE. Electronic questionnaires for measuring parent satisfaction and as a basis for quality improvement. Int J Qual Health Care 2007;19(2):120-4.
  • 17. Abuqamar M, Arabiat DH, Holmes S. Parents’ Perceived Satisfaction of Care, Communication and Environment of the Pediatric Intensive Care Units at a Tertiary Children’s Hospital. J Pediatr Nurs 2016;31(3):e177-e184.
  • 18. Ong LM, de Haes JC, Hoos AM, Lammes FB. Doctor-patient communication: a review of the literature. Soc Sci Med 1995;40(7):903-18.
  • 19. Mittal V. Family-centered rounds. Pediatr Clin North Am 2014;61(4):663-70.
  • 20. Muething SE, Kotagal UR, Schoettker PJ, Gonzalez del Rey J, DeWitt TG. Family-centered bedside rounds: a new approach to patient care and teaching. Pediatrics 2007;119(4):829-32.
  • 21. Shali M, Joolaee S, Navab E, Esmaeili M, Nikbakht Nasrabadi A. White lies in pediatric care: a qualitative study from nurses’ perspective. J Med Ethics Hist Med 2020;13:16.
  • 22. Ehrich J, Pettoello-Mantovani M, Lenton S, Damm L, Goldhagen J. Participation of children and young people in their health care: understanding the potential and limitations. J Pediatr 2015;167(3):783-4.
  • 23. Wigert H, Dellenmark MB, Bry K. Strengths and weaknesses of parent-staff communication in the NICU: a survey assessment. BMC Pediatr 2013;13:71.
  • 24. Mok E, Leung SF. Nurses as providers of support for mothers of premature infants. J Clin Nurs 2006;15(6):726-34.
  • 25. Hall SL, Cross J, Selix NW, et al. Recommendations for enhancing psychosocial support of NICU parents through staff education and support. J Perinatol 2015;35(Suppl 1):S29-S36.
  • 26. Pettoello-Mantovani M, Campanozzi A, Maiuri L, Giardino I. Family- oriented and family-centered care in pediatrics. Ital J Pediatr 2009;35(1):12.
  • 27. Hall SL, Ryan DJ, Beatty J, Grubbs L. Recommendations for peer-to- peer support for NICU parents. J Perinatol 2015;35(Suppl 1):S9-S13.
  • 28. Bracht M, OʼLeary L, Lee SK, OʼBrien K. Implementing family- integrated care in the NICU: a parent education and support program. Adv Neonatal Care 2013;13(2):115-26.
  • 29. Ainbinder JG, Blanchard LW, Singer GH, et al. A qualitative study of Parent to Parent support for parents of children with special needs. Consortium to evaluate Parent to Parent. J Pediatr Psychol 1998;23(2):99-109.
  • 30. Lankston L, Cusack P, Fremantle C, Isles C. Visual art in hospitals: case studies and review of the evidence. J R Soc Med 2010;103(12):490-9.
  • 31. Hamdan A, Alshammary S, Tamani J, Peethambaran S, Hussein M, Alharbi M. The Impact of Creating A Child-Friendly Hospital Environment in Pediatric Cancer Patients and Their Families in Comprehensive Cancer Center at King Fahad Medical City. Curr Pediatr Res 2016;20:47-54.
APA Qutranji L, yorgancı kale b, Baris H, Gokce K, Cetin O, Yılmaz E, Öztürk E, Boran P (2021). Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study. , 231 - 236. 10.26650/jchild.2021.1000170
Chicago Qutranji Lubna,yorgancı kale burçin,Baris Hatice Ezgi,Gokce Kubra,Cetin Okan,Yılmaz Esra,Öztürk Emine Nural,Boran Perran Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study. (2021): 231 - 236. 10.26650/jchild.2021.1000170
MLA Qutranji Lubna,yorgancı kale burçin,Baris Hatice Ezgi,Gokce Kubra,Cetin Okan,Yılmaz Esra,Öztürk Emine Nural,Boran Perran Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study. , 2021, ss.231 - 236. 10.26650/jchild.2021.1000170
AMA Qutranji L,yorgancı kale b,Baris H,Gokce K,Cetin O,Yılmaz E,Öztürk E,Boran P Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study. . 2021; 231 - 236. 10.26650/jchild.2021.1000170
Vancouver Qutranji L,yorgancı kale b,Baris H,Gokce K,Cetin O,Yılmaz E,Öztürk E,Boran P Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study. . 2021; 231 - 236. 10.26650/jchild.2021.1000170
IEEE Qutranji L,yorgancı kale b,Baris H,Gokce K,Cetin O,Yılmaz E,Öztürk E,Boran P "Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study." , ss.231 - 236, 2021. 10.26650/jchild.2021.1000170
ISNAD Qutranji, Lubna vd. "Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study". (2021), 231-236. https://doi.org/10.26650/jchild.2021.1000170
APA Qutranji L, yorgancı kale b, Baris H, Gokce K, Cetin O, Yılmaz E, Öztürk E, Boran P (2021). Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study. Çocuk Dergisi, 21(3), 231 - 236. 10.26650/jchild.2021.1000170
Chicago Qutranji Lubna,yorgancı kale burçin,Baris Hatice Ezgi,Gokce Kubra,Cetin Okan,Yılmaz Esra,Öztürk Emine Nural,Boran Perran Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study. Çocuk Dergisi 21, no.3 (2021): 231 - 236. 10.26650/jchild.2021.1000170
MLA Qutranji Lubna,yorgancı kale burçin,Baris Hatice Ezgi,Gokce Kubra,Cetin Okan,Yılmaz Esra,Öztürk Emine Nural,Boran Perran Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study. Çocuk Dergisi, vol.21, no.3, 2021, ss.231 - 236. 10.26650/jchild.2021.1000170
AMA Qutranji L,yorgancı kale b,Baris H,Gokce K,Cetin O,Yılmaz E,Öztürk E,Boran P Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study. Çocuk Dergisi. 2021; 21(3): 231 - 236. 10.26650/jchild.2021.1000170
Vancouver Qutranji L,yorgancı kale b,Baris H,Gokce K,Cetin O,Yılmaz E,Öztürk E,Boran P Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study. Çocuk Dergisi. 2021; 21(3): 231 - 236. 10.26650/jchild.2021.1000170
IEEE Qutranji L,yorgancı kale b,Baris H,Gokce K,Cetin O,Yılmaz E,Öztürk E,Boran P "Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study." Çocuk Dergisi, 21, ss.231 - 236, 2021. 10.26650/jchild.2021.1000170
ISNAD Qutranji, Lubna vd. "Evaluation of Patient- and Family-Centered Care in a Paediatric Clinic in Turkey: a Qualitative Study". Çocuk Dergisi 21/3 (2021), 231-236. https://doi.org/10.26650/jchild.2021.1000170