Yıl: 2022 Cilt: 20 Sayı: 1 Sayfa Aralığı: 55 - 63 Metin Dili: İngilizce DOI: 10.21911/aai.686 İndeks Tarihi: 13-05-2023

Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey

Öz:
Objective: In many countries worldwide, medical knowledge of PIDs remains insufficient, which leads to late diagnosis, higher morbidity, a shorter life span, and worse quality of life. This study aims to assess the level of awareness and knowledge of physicians working in Turkey about PIDs. Materials and Methods: Between June and September 2019, a questionnaire regarding the findings, diagnosis, and treatment of PIDs was sent via social media to physicians from various medical specialties. The research was conducted using the data collected from physicians who agreed to participate in the study and completed the questionnaire. Results: The results of 661 participants (50.8%) who completed the entire survey were evaluated. While the majority of the questions in the general information section about PIDs were correctly answered by more than 80% of the physicians, knowledge about warning signs, laboratory findings, and treatment methods was less robust. Remarkably, pediatricians’ knowledge was slightly higher than that of other specialties. Only a small part of family physicians and internists felt competent; 29.7% of pediatricians, 8.2% of family physicians, and 19% of internists felt worried; and half of the family physicians and internists stated they referred these patients directly without performing any evaluation. Conclusion: It may be possible to perform intervention programs to enhance primary care for PIDs in Turkey using this information regarding physicians’ PID management approaches, views, and beliefs.
Anahtar Kelime:

Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık
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  • 1. Tangye SG, Al-Herz W, Bousfiha A, Chatila T, Cunningham- Rundles C, Etzioni A, et al. Human inborn errors of immunity: 2019 update on the Classification from the International Union of Immunological Societies Expert Committee. J Clin Immunol 2020;40(1):24-64.
  • 2. Tangye SG, Al-Herz W, Bousfiha A, Cunningham-Rundles C, Franco JL, Holland SM, et al. The ever-increasing array of novel inborn errors of immunity: An interim update by the IUIS Committee. J Clin Immunol 2021;41(3):666-79.
  • 3. Kilic SS, Ozel M, Hafizoglu D, Karaca NE, Aksu G, Kutukculer N. The prevalences [correction] and patient characteristics of primary immunodeficiency diseases in Turkey--two centers study. J Clin Immunol 2013;33(1):74-83.
  • 4. Boyle JM, Buckley RH. Population prevalence of diagnosed primary immunodeficiency diseases in the United States. J Clin Immunol 2007;27(5):497-502.
  • 5. Esenboga S, Cagdas D, Ozgur TT, Gur Cetinkaya P, Turkdemir LM, Sanal O, et al. Clinical and genetic features of the patients with X-Linked agammaglobulinemia from Turkey: Single-centre experience. Scand J Immunol 2018;87(3).
  • 6. Jesenak M, Banovcin P, Jesenakova B, Babusikova E. Pulmonary manifestations of primary immunodeficiency disorders in children. Front Pediatr 2014;2:77.
  • 7. Carneiro-Sampaio M, Jacob CM, Leone CR. A proposal of warning signs for primary immunodeficiencies in the first year of life. Pediatr Allergy Immunol 2011;22(3):345-6.
  • 8. Walter JE, Farmer JR, Foldvari Z, Torgerson TR, Cooper MA. Mechanism-based strategies for the management of autoimmunity and immune dysregulation in primary immunodeficiencies. J Allergy Clin Immunol Pract 2016;4(6):1089-100.
  • 9. Yuksek M, Ikinciogullari A, Dogu F, Elhan A, Yuksek N, Reisli I, et al. Primary immune deficiency disease awareness among a group of Turkish physicians. Turk J Pediatr 2010;52(4):372-7.
  • 10. Al-Hammadi S, Al-Reyami E, Al-Remeithi S, Al-Zaabi K, Al-Zir R, Al-Sagban H, et al. Attentiveness of pediatricians to primary immunodeficiency disorders. BMC Res Notes 2012;5:393.
  • 11. AlFattani A, Rabhan F, AlAssaf L, Alghammas A, De Vol E. National survey about awareness of primary immunodeficiency disorders among primary care physicians in Saudi Arabia: Protocol and challenges. J Prim Care Community Health 2020;11:2150132720951288.
  • 12. Sanal O, Tezcan I. Thirty years of primary immunodeficiencies in Turkey. Ann N Y Acad Sci 2011;1238:15-23.
  • 13. El-Helou SM, Biegner AK, Bode S, Ehl SR, Heeg M, Maccari ME, et al. The German National Registry of primary immunodeficiencies (2012-2017). Front Immunol 2019;10:1272.
  • 14. Kwan A, Hu D, Song M, Gomes H, Brown DR, Bourque T, et al. Successful newborn screening for SCID in the Navajo Nation. Clin Immunol 2015;158(1):29-34.
  • 15. Pai SY, Logan BR, Griffith LM, Buckley RH, Parrott RE, Dvorak CC, et al. Transplantation outcomes for severe combined immunodeficiency, 2000-2009. N Engl J Med 2014;371(5):434- 46.
  • 16. Modell F, Puente D, Modell V. From genotype to phenotype. Further studies measuring the impact of a physician education and public awareness campaign on early diagnosis and management of primary immunodeficiencies. Immunol Res 2009;44(1-3):132-49.
APA Esenboğa S, bildik h, Ocak M, Soyak Aytekin E, Akarsu A, Çağdaş D, Tezcan İ (2022). Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey. , 55 - 63. 10.21911/aai.686
Chicago Esenboğa Saliha,bildik hacer neslihan,Ocak Melike,Soyak Aytekin Elif,Akarsu Aysegul,Çağdaş Deniz,Tezcan İlhan Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey. (2022): 55 - 63. 10.21911/aai.686
MLA Esenboğa Saliha,bildik hacer neslihan,Ocak Melike,Soyak Aytekin Elif,Akarsu Aysegul,Çağdaş Deniz,Tezcan İlhan Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey. , 2022, ss.55 - 63. 10.21911/aai.686
AMA Esenboğa S,bildik h,Ocak M,Soyak Aytekin E,Akarsu A,Çağdaş D,Tezcan İ Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey. . 2022; 55 - 63. 10.21911/aai.686
Vancouver Esenboğa S,bildik h,Ocak M,Soyak Aytekin E,Akarsu A,Çağdaş D,Tezcan İ Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey. . 2022; 55 - 63. 10.21911/aai.686
IEEE Esenboğa S,bildik h,Ocak M,Soyak Aytekin E,Akarsu A,Çağdaş D,Tezcan İ "Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey." , ss.55 - 63, 2022. 10.21911/aai.686
ISNAD Esenboğa, Saliha vd. "Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey". (2022), 55-63. https://doi.org/10.21911/aai.686
APA Esenboğa S, bildik h, Ocak M, Soyak Aytekin E, Akarsu A, Çağdaş D, Tezcan İ (2022). Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey. Astım Allerji İmmünoloji, 20(1), 55 - 63. 10.21911/aai.686
Chicago Esenboğa Saliha,bildik hacer neslihan,Ocak Melike,Soyak Aytekin Elif,Akarsu Aysegul,Çağdaş Deniz,Tezcan İlhan Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey. Astım Allerji İmmünoloji 20, no.1 (2022): 55 - 63. 10.21911/aai.686
MLA Esenboğa Saliha,bildik hacer neslihan,Ocak Melike,Soyak Aytekin Elif,Akarsu Aysegul,Çağdaş Deniz,Tezcan İlhan Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey. Astım Allerji İmmünoloji, vol.20, no.1, 2022, ss.55 - 63. 10.21911/aai.686
AMA Esenboğa S,bildik h,Ocak M,Soyak Aytekin E,Akarsu A,Çağdaş D,Tezcan İ Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey. Astım Allerji İmmünoloji. 2022; 20(1): 55 - 63. 10.21911/aai.686
Vancouver Esenboğa S,bildik h,Ocak M,Soyak Aytekin E,Akarsu A,Çağdaş D,Tezcan İ Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey. Astım Allerji İmmünoloji. 2022; 20(1): 55 - 63. 10.21911/aai.686
IEEE Esenboğa S,bildik h,Ocak M,Soyak Aytekin E,Akarsu A,Çağdaş D,Tezcan İ "Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey." Astım Allerji İmmünoloji, 20, ss.55 - 63, 2022. 10.21911/aai.686
ISNAD Esenboğa, Saliha vd. "Awareness Concerning Primary Immunodeficiencies Among Physicians in Turkey". Astım Allerji İmmünoloji 20/1 (2022), 55-63. https://doi.org/10.21911/aai.686