Determining the burden of mothers with children who have cancer

CONK, Zeynep; ELÇİGİL, Ayfer

Determining the burden of mothers with children who have cancer

Ayfer ELÇİGİL, (Dokuz Eylül Üniversitesi, Hemşirelik Yüksekokulu, İzmir, Türkiye)

Zeynep CONK (Dokuz Eylül Üniversitesi, Hemşirelik Yüksekokulu, İzmir, Türkiye)

Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi

4 1

Yıl: 2010 Cilt: 3 Sayı: 4 Sayfa Aralığı: 175 - 181 Metin Dili: Türkçe İndeks Tarihi: 29-07-2022

Determining the burden of mothers with children who have cancer

Öz:

Giriş: Kanser tedavisindeki gelişmeler kanserin kronik bir hastalık olarak algılanmasını sağlamıştır. bu değişim çocuklarının gereksinimlerini Karşılamaya çalışan aileleri de etkilemiştir. Amaç: Bu çalışma çocuğu kanser olan annelerin yükünü belirlemek için yapılmıştır. Yöntem: Derinlemesine görüşme yönteminin kullanıldığı niteliksel bir çalışmadır. Veriler 23 anne ile görüşülmüştür. Veriler doyum noktasına gelinceye kadar toplanmaya devam dilmiştir. Verilerin toplanmasında çocuğu kanser olan annelerin son bir yılda yaşadıklarını belirlemek amacıyla yarı yapılandırılmış görüşme formu kullanılmıştır. Teybe kayıt edilen verilerin tüm dökümü yapılmış ve içerik analizi kullanılarak veriler analiz edilmiştir. Görüşmeler bittikten sonra verilerin ham dökümleri araştırmacı tarafından yapılmış ve dökümleri yapılan ham veriler daha önceden belirlenen ve çalışma sonunda da doğrulanan temalara göre sınıflandırılmıştır. Daha sonra tüm bu veriler yorumlanarak rapor haline getirilmiştir. Bulgular: Çocukların tedaviye uyumlarında ve annelerin tedavinin yan etkileri ile baş etmede güçlükler yaşamaktadırlar. Ebeveynlerin stres düzeyi tanıyı ilk duyduklarında çok yüksektir. Ebeveynler bakım sürecinde yoğun stres yaşamakta, stresle etkili şekilde baş edememekte ve bu aile içi ilişkileri çoğu kez olumsuz olarak etkilemektedir. Ebeveynler çocuğa karşı aşırı hoşgörülü ve koruyucu olduğunu ifade etmektedirler. Anneler eski sosyal aktivitelerini yerine getiremediklerini ve sosyal ilişkilerinin azaldığını söylemektedirler. Anneler genellikle benzer sorunu olan annelerle daha rahat konuştuklarını ve bunun kendilerini rahatlattığını belirtmektedirler. Sonuç: Elde edilen sonuçlar doğrultusunda hemşirelerin aileye ve çocuğa tedavinin yan etkileri ve bunlarla nasıl baş edecekleri konusunda bilgi vermeleri, ebeveynlere stresle baş etmelerini sağlayacak programlar düzenlenmesi, ebeveyn destek grubunun oluşturulması önerilmektedir.

Anahtar Kelime:

Konular: Hemşirelik

Çocuğu kanser olan annelerin “aile yükü” nün belirlenmesi

Öz:

Background:The developments in cancer treatment have changed the perception of cancer to be a chronic illness which reoccurs at certain intervals where the patient needs appropriate interventions and careful monitoring. This has in turn affected families as they respond to the ongoing needs of the child who is living with cancer. Objectives: The purpose of this study was to determine the burden on mothers of children who have cancer and the related effects on the family unit. Method: This qualitative descriptive study used in-depth interviews to provide study data. The data collecting was continued until a saturation point was reached which was 23 mothers. The interview form was composed of semi-structured questions to explore the burden of care of mothers with children diagnosed with cancer within the previous twelve months. The tape-recorded interviews were transcribed verbatim and data were analyzed using qualitative content analysis. During the planning for the research, four main themes had been established from the literature and according to the perception of the researchers: emotional, economical, social and physical burden. Analyis revealed the raw data was compatible with these previously determined themes. One other theme, labelled “coping strategies”, was also derived from the data during analysis. Results: The primary results of the study showed that, as the children were experiencing difficulty with adjusting to taking their treatment, the mothers had trouble coping with the side effects their child was experiencing. Mothers described experiencing intense stress while providing child care and being unable to deal with it effectively. This in turn had an adverse effect on inter-family relations in most cases. Mothers also did not engage in their previous social activities and reported that their social relations diminished. Mothers indicated that they were generally more comfortable talking with mothers experiencing the same problem. Conclusion: It is suggested that the nurses provide information and support to the mothers and the child in relation to side effects and best ways of coping with them. The nurses should support the mothers in maintaining their previous lifestyle as much as possible. Establishing support groups and incouraging the mothers to join such groups is urged.

Anahtar Kelime:

Konular: Hemşirelik

Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık

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APA	ELÇİGİL A, CONK Z (2010). Determining the burden of mothers with children who have cancer. , 175 - 181.
Chicago	ELÇİGİL Ayfer,CONK Zeynep Determining the burden of mothers with children who have cancer. (2010): 175 - 181.
MLA	ELÇİGİL Ayfer,CONK Zeynep Determining the burden of mothers with children who have cancer. , 2010, ss.175 - 181.
AMA	ELÇİGİL A,CONK Z Determining the burden of mothers with children who have cancer. . 2010; 175 - 181.
Vancouver	ELÇİGİL A,CONK Z Determining the burden of mothers with children who have cancer. . 2010; 175 - 181.
IEEE	ELÇİGİL A,CONK Z "Determining the burden of mothers with children who have cancer." , ss.175 - 181, 2010.
ISNAD	ELÇİGİL, Ayfer - CONK, Zeynep. "Determining the burden of mothers with children who have cancer". (2010), 175-181.

APA	ELÇİGİL A, CONK Z (2010). Determining the burden of mothers with children who have cancer. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi, 3(4), 175 - 181.
Chicago	ELÇİGİL Ayfer,CONK Zeynep Determining the burden of mothers with children who have cancer. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi 3, no.4 (2010): 175 - 181.
MLA	ELÇİGİL Ayfer,CONK Zeynep Determining the burden of mothers with children who have cancer. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi, vol.3, no.4, 2010, ss.175 - 181.
AMA	ELÇİGİL A,CONK Z Determining the burden of mothers with children who have cancer. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi. 2010; 3(4): 175 - 181.
Vancouver	ELÇİGİL A,CONK Z Determining the burden of mothers with children who have cancer. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi. 2010; 3(4): 175 - 181.
IEEE	ELÇİGİL A,CONK Z "Determining the burden of mothers with children who have cancer." Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi, 3, ss.175 - 181, 2010.
ISNAD	ELÇİGİL, Ayfer - CONK, Zeynep. "Determining the burden of mothers with children who have cancer". Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Elektronik Dergisi 3/4 (2010), 175-181.