Yıl: 2020 Cilt: 13 Sayı: 1 Sayfa Aralığı: 92 - 99 Metin Dili: İngilizce DOI: 10.12711/tjbe.2020.13.1.0144 İndeks Tarihi: 26-01-2022

Management of Patient Information and Privacy Protection

Öz:
Developments in science and technology have led to globalization in today’s world. Moreover, the developments have gone far beyond the concepts of time, space, and person; they have started to reach people rapidly and easily, with individuality being reduced to a minimum. Thus, the boundaries on individuals’ life/space and the values/elements belonging to this space have become transparent. The healthcare field has also taken its large share from these technological developments, and the use of information technologies in the healthcare field has gradually increased. Instant access to medical information has provided a rapid acceleration in the ease of information exchange and care quality. However, this emerging picture of transparency has brought certain concerns about privacy and privacy violations. The concept of patient rights, which had begun being discussed alongside the adoption of the Declaration of Human Rights, also embodies many significant principles such as respect for human dignity, receiving patient approval in medical interventions, privacy, and respect for one’s personal life. Therefore, preventing these emerging concerns and protecting data about individuals’ private lives have become quite important. The ethical requirements begun with the Hippocratic Oath have gained strength alongside the laws states have enacted about this issue, as well as the suggestions offered by various organizations and communities toward patient confidentiality and privacy. In Turkey, activities of units established on this issue have been developing gradually since the Patient Rights Code came into effect (1998). Protecting individual rights and patients’ benefits is one of the primary responsibilities of healthcare professionals. In this context, healthcare professionals essentially must activate patient autonomy by providing privacy and confidentiality during the care and treatment process. Autonomy, which is an important part of patient-centered care, is also a basic need and necessity.
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  • Abdekhoda, M., Dehnad, A. ve Khezri, H. (2019). The effect of confidentiality and privacy concerns on adoption of personal health record from patient’s perspective. Health and Technology, 9, 463-469.
  • Abdelhamid, M., Gaia, J. ve Sanders, G. L. (2017). Putting the focus back on the patient: How privacy concerns affect personal health ınformation sharing intentions. Journal of Medical Internet Research, 19(9), 1-12.
  • American College of Surgeons. (2016). Confidentiality of medical records. https://www.facs.org/ about-acs/statements/stonprin adresinden 13.04.2019 tarihinde erişilmiştir.
  • American Medical Association. (2019). Professionalism in the use of social media. https:// www.ama-assn.org/delivering-care/ethics/professionalism-use-social-media adresinden 13.04.2019 tarihinde erişilmiştir.
  • Antoun, J. (2016). Electronic mail communication between physicians and patients: A review of challenges and opportunities. Family Practice, 33(2), 121-6.
  • AORN. (2019). Information management. https://www.aorn.org/guidelines/about-aorn-guidelines/ evidence-tables adresinden 13.04.2019 tarihinde erişilmiştir.
  • Asiri, A., AlBishi, S., AlMadani, W., ElMetwally, A. ve Househ, M. (2018). The use of telemedicine in surgical care: A systematic review. Acta Informatica Medica, 26(3), 201-206. Beltran-Aroca, C. M., Girela-Lopez, E., Collazo-Chao, E., Montero-Pérez-Barquero, M. ve
  • Muñoz-Villanueva, M. C. (2016). Confidentiality breaches in clinical practice: what happens in hospitals? BMC Medical Ethics, 17(1), 1-12.
  • Beltran‑Aroca, C. M., Labella, F., Font‑Ugalde, P. ve Girela‑Lopez, E. (2019). Assessment of doctors’ knowledge and attitudes towards confidentiality in hospital care. Science and Engineering Ethics, 25(5), 1531-1548.
  • Blake, J. H., Schwemmer, M. K. ve Sade, R. M. (2012). The patient-surgeon relationship in the cyber era: Communication and information. Thoracic Surgery Clinics, 22(4), 531-538.
  • Chaet, D., Clearfield, R., Sabin, J. E. ve Skimming, K. (2017). Ethical practice in telehealth and telemedicine. Journal of General Internal Medicine, 32(10), 1136-1140.
  • Chiuchisan, I., Balan, D. G., Geman, O., Chiuchisan, I. ve Gordin, I. (2017). A security approach for health care information systems. The 6th IEEE International Conference on E-Health and Bioengineering sunulan bildiri (ss. 721-724). https://ieeexplore.ieee.org/abstract/document/ 7995525 adresinden 17.05.2019 tarihinde erişilmiştir.
  • Cook, N., Maganti, M., Dobriyal, A., Sheinis, M., Wei, A. C., Ringash, J. ve Krzyzanowska, M. K. (2016). E-mail communication practices and preferences among patients and providers in a large comprehensive cancer center. Journal of Oncology Practice, 12(7), 676-84.
  • Costa, M. A., Yao, C. A., Gillenwater, J., Taghva, G. H., Abrishami, S., Green, T. A. ve Magee, W. P.(2015). Telemedicine in cleft care: Reliability and predictability in regional and international practice settings. The Journal of Craniofacial Surgery, 26(4), 1116-1120.
  • Daily Mail. (2011). Four nursing students expelled from university after posting pictures of themselves posing with a human placenta on Facebook. https://www.dailymail.co.uk/news/article- 1343628/4-nursing-students-expelled-posting-Facebook-human-placenta-pictures.html adresinden 14.04.2019 tarihinde erişilmiştir.
  • Daniel, F., Jabak, S., Sasso, R., Chamoun, Y. ve Tamim, H. (2018). Patient-physician communication in the era of mobile phones and social media apps: Cross-sectional observational study on lebanese physicians’ perceptions and attitudes. JMIR Medical Informatics, 6(2), 1-8.
  • Dash, J., Haller, D. M., Sommer, J. ve Junod-Perron, N. (2016). Use of email, cell phone and text message between patients and primary-care physicians: cross-sectional study in a French- speaking part of Switzerland. BMC Health Services Research, 16(1), 1-7.
  • Davaris, M., Barnett, S., Abouassaly, R. and Lawrentschuk, N. (2017). Thoracic surgery information on the internet: A multilingual quality assessment. Interactive Journal of Medical Research, 6(1), 1-13.
  • de Faria, P. L. ve Cordeiro, J. V. (2014). Health data privacy and confidentiality rights: Crisis or redemption? Revista Portuguesa de Saúde Pública, 32(2), 123-133.
  • Demirsoy, N. ve Kirimlioglu, N. (2016). Protection of privacy and confidentiality as a patient right: physicians’ and nurses’ viewpoints. Biomedical Research, 27(4), 1437-1448.
  • Denecke, K. (2014). Ethical aspects of using medical social media in healthcare applications. Studies in Health Technolgy and Informatics, 198, 55-62.
  • Dheensa, S., Fenwick, A. ve Lucassen, A. (2016). ‘Is this knowledge mine and nobody else’s? I don’t feel that.’ Patient views about consent, confidentiality and information-sharing in genetic medicine. J Med Ethics, 42, 174-179.
  • Fencl, J. L. (2016). Guideline implementation: Patient information management. AORN Journal, 104(6), 566-577.
  • Harman, L. B., Flite, C. A. ve Bond, K. (2012). Electronic health records: Privacy, confidentiality, and security. American Medical Association Journal of Ethics, 14(9), 712-719.
  • Holmes, M. M. (2019). Why people living with and beyond cancer use the internet. Integrative cancer therapies, 18(1), 1-6.
  • İlgün, G. ve Uğurluoğlu, Ö. (2019). How Turkish private hospitals use social media: A qualitative study. Journal Of Socıal Servıce Research, 45(1), 34-43.
  • Jildeh, T. R., Okoroha, K. R., Guthrie, S. T. ve Parsons III, T. W. (2019). Social media use for orthopaedic surgeons. JBJS Reviews, 7(3), 1-8.
  • Karro, J., Dent, A. W. ve Farish, S. (2005). Patient perceptions of privacy infringements in an emergency department. Emergency medicine Australasia, 17(2), 117-23.
  • Kim, K., Han, Y. ve Kim, J. S. (2017). Nurses’ and patients’ perceptions of privacy protection behaviours and information provision. Nursing Ethics, 24(5), 598-611.
  • Krynski, L., Goldfarb, G., ve Maglio, I. (2018). Technology-mediated communication with patients: WhatsApp Messenger, e-mail, patient portals. A challenge for pediatricians in the digital era. Archivos Argentinos De Pediatria, 116(4), e554-e559.
  • Makarem, N. N. and Antoun, J. (2016). Email communication in a developing country: Different family physician and patient perspectives. The Libyan Journal of Medicine, 11(1), 1-8.
  • McLawhorn, A. S., De Martino, I., Fehring, K. A. ve Sculco, P. K. (2016). Social media and your practice: Navigating the surgeon-patient relationship. Current Reviews in Musculoskeletal Medicine, 9(4), 487-495.
  • Mevzuat Bilgi Sistemi. (1998). Hasta hakları yönetmeliği. http://www.mevzuat.gov.tr/Metin. Aspx?MevzuatKod=7.5.4847&MevzuatIliski=0&sourceXmlSearch=hasta%20haklar%- C4%B1 adresinden 13.04.2019 tarihinde erişilmiştir.
  • Mohammadi, M., Larijani, B., Emami-Razavi, S. H., Fotouhi, A., Ghaderi, A., Madani, S. H. ve Shafiee, M. N. (2018). Do patients know that physicians should be confidential? Study on patients’ awareness of privacy and confidentiality. Journal of Medical Ethics and History of Medicine, 11(1), 1-7.
  • Naam, N. H. ve Sanbar, S. (2015). Advanced technology and confidentiality in hand surgery. The Journal of Hand Surgery, 40(1), 182-187.
  • Niimi, Y. ve Ota, K. (2017). Examination of an electronic patient record display method to protect patient information privacy. Computers, Informatics, Nursing, 35(2), 100-108.
  • Plant, M. A. ve Fish, J. S. (2015). Resident use of the internet, e-mail, and personal electronics in the care of surgical patients. Teaching and learning medicine, 27(2), 215-23.
  • Richter, J. P., Muhlestein, D. B. ve Wilks, C. E. (2014). Social media: How hospitals use it, and opportunities for future use. J Healthc Manag, 59(6), 447-60.
  • Rimmer, A. (2017). Five facts about patient confidentiality. BMJ, 356(j636). https://www.bmj. com/content/356/bmj.j636 adresinden 29.06.2019 tarihinde erişilmiştir.
  • Rosner, F. (2006). Medical confidentiality and patient privacy: The Jewish perspective. Cancer Investigation, 24(1), 113-5.
  • Saunders, J. (2016). Confidentiality. Medicine, 44(10), 596-597. Schwartz, P. H., Caine, K., Alpert, S. A., Meslin, E. M., Carroll, A. E. ve Tierney, W. M. (2015). Patient preferences in controlling access to their electronic health records: A prospective cohort study in primary care. Journal of General Internal Medicine, 30(1), 25-30.
  • Segura-Sampedro, J. J., Rivero-Belenchón, I., Pino-Díaz, V., Rodríguez-Sánchez, M. C., Pareja-Ciuró, F., Padillo-Ruiz, J. ve Jimenez-Rodriguez, R. M. (2017). Feasibility and safety of surgical wound remote follow-up by smart phone in appendectomy: A pilot study. Annals of Medicine and Surgery, 21, 58-62.
  • Shaikh, Z. (2019). Legal and ethical considerations in postingclinical images on social media. Perspective, 6, 43-8.
  • Shenoy, A. ve Appel, J. M. (2017). Safeguarding confidentiality in electronic health records. Cambridge Quarterly of Healthcare Ethics, 26(2), 337-341.
  • Simpson, J. (2018). GMC confidentiality guidance 2017. ADC Education & Practice, 104(4), 214- 217.
  • Sulmasy, L. S., López, A. M., Horwitch, C. A. (2017). Ethical implications of the electronic health record: In the service of the patient. Journal of General Internal Medicine, 32(8), 935-939.
  • Ting, X., Yong, B., Yin, L. ve Mi, T. (2016). Patient perception and the barriers to practicing patient-centered communication: A survey and in-depth interview of Chinese patients and physicians. Patient Educ Couns, 99(3), 364-369.
  • Tran, K., Morra, D., Lo, V., Quan, S. D., Abrams, H. ve Wu, R. C. (2014). Medical students and personal smartphones in the clinical environment: The impact on confidentiality of personal health information and professionalism. Journal of Medical Internet Research, 16(5).
  • U. S. Department of Health & Human Services. (2017). HIPAA for professionals. https://www.hhs. gov/hipaa/for-professionals/index.html adresinden 13.04.2019 tarihinde erişilmiştir.
  • Valente, D. S., Silveira-Eifler, L., Carvalho, L. A., Filho, G. A., Ribeiro, V. W. ve Padoin, A. V. (2015). Telemedicine and plastic surgery: A pilot study. Plastic Surgery International, 2015, 187505.
  • Varsi, C., Gammon, D., Wibe, T. and Ruland, C. M. (2013). Patients’ reported reasons for non-use of an internet-based patient-provider communication service: Qualitative interview study. Journal of Medical Internet Research, 15(11), e246.
  • WHO Global Observatory for eHealth. ( 2012) . Management of patient information: Trends and challenges in Member States: based on the findings of the second global survey on eHealth. World Health Organization. https://apps.who.int/iris/bitstream/handle/ 10665/76794/9789241504645_eng.pdf?sequence=1&isAllowed=y adresinden 16.05.2019 tarihinde erişilmiştir.
  • Williams, A. M., Bhatti, U. F., Alam, H. B. ve Nikolian, V. C. (2018). The role of telemedicine in postoperative care. Mhealth, 4, 1-9.
  • Yousuf, R., Bakar, S. M. A., Haque, M., Islam, M. N. ve Salam, A. (2017). Medical professional and usage of social media. Bangladesh Journal of Medical Science, 16(4), 606-609.
  • Zibrowski, E., Shepherd, L., Booth, R., Sedig, K. ve Gibson, C. (2019). A qualitative study of the theory behind the chairs: Balancing lean-accelerated patient flow with the need for privacy and confidentiality in an emergency medicine setting. JMIR Human Factors, 6(1), 1-10.
APA Aygin D, GÜL A (2020). Management of Patient Information and Privacy Protection. , 92 - 99. 10.12711/tjbe.2020.13.1.0144
Chicago Aygin Dilek,GÜL Aysel Management of Patient Information and Privacy Protection. (2020): 92 - 99. 10.12711/tjbe.2020.13.1.0144
MLA Aygin Dilek,GÜL Aysel Management of Patient Information and Privacy Protection. , 2020, ss.92 - 99. 10.12711/tjbe.2020.13.1.0144
AMA Aygin D,GÜL A Management of Patient Information and Privacy Protection. . 2020; 92 - 99. 10.12711/tjbe.2020.13.1.0144
Vancouver Aygin D,GÜL A Management of Patient Information and Privacy Protection. . 2020; 92 - 99. 10.12711/tjbe.2020.13.1.0144
IEEE Aygin D,GÜL A "Management of Patient Information and Privacy Protection." , ss.92 - 99, 2020. 10.12711/tjbe.2020.13.1.0144
ISNAD Aygin, Dilek - GÜL, Aysel. "Management of Patient Information and Privacy Protection". (2020), 92-99. https://doi.org/10.12711/tjbe.2020.13.1.0144
APA Aygin D, GÜL A (2020). Management of Patient Information and Privacy Protection. İş Ahlakı Dergisi, 13(1), 92 - 99. 10.12711/tjbe.2020.13.1.0144
Chicago Aygin Dilek,GÜL Aysel Management of Patient Information and Privacy Protection. İş Ahlakı Dergisi 13, no.1 (2020): 92 - 99. 10.12711/tjbe.2020.13.1.0144
MLA Aygin Dilek,GÜL Aysel Management of Patient Information and Privacy Protection. İş Ahlakı Dergisi, vol.13, no.1, 2020, ss.92 - 99. 10.12711/tjbe.2020.13.1.0144
AMA Aygin D,GÜL A Management of Patient Information and Privacy Protection. İş Ahlakı Dergisi. 2020; 13(1): 92 - 99. 10.12711/tjbe.2020.13.1.0144
Vancouver Aygin D,GÜL A Management of Patient Information and Privacy Protection. İş Ahlakı Dergisi. 2020; 13(1): 92 - 99. 10.12711/tjbe.2020.13.1.0144
IEEE Aygin D,GÜL A "Management of Patient Information and Privacy Protection." İş Ahlakı Dergisi, 13, ss.92 - 99, 2020. 10.12711/tjbe.2020.13.1.0144
ISNAD Aygin, Dilek - GÜL, Aysel. "Management of Patient Information and Privacy Protection". İş Ahlakı Dergisi 13/1 (2020), 92-99. https://doi.org/10.12711/tjbe.2020.13.1.0144