Yıl: 2022 Cilt: 37 Sayı: 1 Sayfa Aralığı: 105 - 112 Metin Dili: İngilizce DOI: 10.4274/MMJ.galenos.2022.54920

Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study

Öz:
Objective: This study aimed to investigate the current status and changes in motor and functional status, participation, and quality of life of individuals with cerebral palsy (CP) during the 13-year follow-up. Methods: Data from the database were retrospectively analyzed, including comorbidities, mobility status, orthotic usage, and information about the rehabilitation program and follow-up. The EuroQol 5-Dimension 3-Level (EQ-5D-3L) was used to measure the health-related quality of life. Results: Of our participants, 38.4% could independently walk 13-years ago, which increased to 51.2% presently. The orthotic usage decreased from 48.7% to 25.6%, and the rate of continuing rehabilitation decreased from 100% to 58.9%. The mean EQ-5D-3L score was 0.36±0.42, and the mean EQ-visual analog scale score was 68±24.01. Conclusions: Individuals with CP and their caregivers should be aware that CP is a lifelong disease and their continuity in rehabilitation programs should be encouraged. Independence in daily life activities should be aimed and participation in social life should be ensured.
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Konular:
Fen > Tıp > Genel ve Dahili Tıp
Fen > Tıp > Genel ve Dahili Tıp

Serebral Palside Yaşam Kalitesi, Katılım ve Fonksiyonel Durum: 13 Yıl Takip Çalışması

Öz:
Amaç: Serebral palsili (SP) bireylerin 13 yıllık izlem süresince fonksiyonel durum, katılım ve yaşam kalitelerindeki değişimin araştırılması amaçlanmıştır. Yöntemler: Geçmiş veriler veritabanından elde edildi. Komorbiditeler, mobilite durumu, ortez kullanımı, rehabilitasyon programı ve izlem bilgileri sorgulandı. Sağlıkla ilişkili yaşam kalitesini ölçmek için EuroQol 5-Dimension 3-Level (EQ-5D-3L) kullanıldı. Bulgular: On üç yıl önce katılımcıların %38,4’ü bağımsız yürüyebiliyorken, günümüzde bu oran %51,2’ye yükselmişti. Ortez kullanımının %48,7’den %25,6’ya, rehabilitasyona devam etme oranının %100’den %58,9’a düştüğü tespit edildi. Ortalama EQ-5D-3L skoru 0,36±0,42, ortalama EQ-vizüel analog skala skoru 68±24,01 idi. Sonuçlar: SP’li bireyler ve bakım verenlerinde, SP’nin ömür boyu süren bir hastalık olduğu farkındalığı yaratılmalı ve rehabilitasyon programlarına devamlılıkları teşvik edilmelidir. Günlük yaşam aktivitelerinde bağımsızlık hedeflenmeli, sosyal yaşama katılımları sağlanmalıdır.
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Konular:
Fen > Tıp > Genel ve Dahili Tıp
Fen > Tıp > Genel ve Dahili Tıp
Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık
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APA KARATEKIN B, ICAGASIOGLU A (2022). Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study. Medeniyet Medical Journal, 37(1), 105 - 112. 10.4274/MMJ.galenos.2022.54920
Chicago KARATEKIN Bilinc DOGRUOZ,ICAGASIOGLU Afitap Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study. Medeniyet Medical Journal 37, no.1 (2022): 105 - 112. 10.4274/MMJ.galenos.2022.54920
MLA KARATEKIN Bilinc DOGRUOZ,ICAGASIOGLU Afitap Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study. Medeniyet Medical Journal, vol.37, no.1, 2022, ss.105 - 112. 10.4274/MMJ.galenos.2022.54920
AMA KARATEKIN B,ICAGASIOGLU A Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study. Medeniyet Medical Journal. 2022; 37(1): 105 - 112. 10.4274/MMJ.galenos.2022.54920
Vancouver KARATEKIN B,ICAGASIOGLU A Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study. Medeniyet Medical Journal. 2022; 37(1): 105 - 112. 10.4274/MMJ.galenos.2022.54920
IEEE KARATEKIN B,ICAGASIOGLU A "Quality of Life, Participation, and Functional Status in Cerebral Palsy: A 13-year Follow-up Study." Medeniyet Medical Journal, 37, ss.105 - 112, 2022. 10.4274/MMJ.galenos.2022.54920