Cross-sectional study: long term follow-up care for pediatric cancer survivors in a
developing country, Turkey: current status, challenges, and future perspectives

Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives

Öz:

Aim: The main purpose of this study is to determine the current status of long-term follow-up (LTFU) for childhood cancer survivors and the challenges of LTFU for pediatric cancer survivors at pediatric oncology institutions in Turkey. Material and methods: A questionnaire was e-mailed to the directors of 33 pediatric oncology centers (POCs) registered in the Turkish Pediatric Oncology Group (TPOG). Of these 33 active TPOG institutions, 21 participated in the study and returned their completed questionnaires. Results: Only 1 of the 21 participating centers had a separate LTFU clinic. The remaining centers provided LTFU care for childhood cancer survivors at the pediatric oncology outpatient clinic. Of these centers, 17 (80.9%) reported difficulty in transition from the pediatric clinic to the adult clinic, 14 (66.6%) reported insufficient care providers, and 12 (57.1%) reported insufficient time and transportation problems. As neglected late effects, 16 (76.1%) centers reported psychosocial and getty job problems and 11 (52.3%) reported sexual and cognitive problems. None of the centers had their own LTFU guidelines for their daily LTFU practice. Conclusion: This study was the first to gain an overview of the needs of POCs and the gaps in survivorship services in Turkey. The results from this study will help to develop a national health care system and national guidelines for pediatric cancer survivors.

Anahtar Kelime:

Belge Türü: Makale Makale Türü: Araştırma Makalesi Erişim Türü: Erişime Açık

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APA	İNCESOY ÖZDEMİR S, Tacyildiz N, Varan A, Kebudi R, Zulfikar B, CELKAN T, SAHIN G, corapcioglu f, Keskin Yildirim Z, Pinarli F, Olgun N, Sarı N, Dağdemir A, Ozyoruk D, Eren T, Cakir F, Adaklı Aksoy B, Bozkurt C, Güler E, OZGUVEN A, Erbey F, Berber Hamamcı M, Ugur Dincaslan H, Unal E, Kantar M (2020). Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives. , 1916 - 1921. 10.3906/sag-1911-193
Chicago	İNCESOY ÖZDEMİR SONAY,Tacyildiz Nurdan,Varan Ali,Kebudi Rejin,Zulfikar Bulent,CELKAN TÜLIN TIRAJE,SAHIN GÜRSES,corapcioglu funda,Keskin Yildirim Zuhal,Pinarli Faruk Guclu,Olgun Nur,Sarı Neriman,Dağdemir Ayhan,Ozyoruk Derya,Eren Tuba,Cakir Fatma Betul,Adaklı Aksoy Başak,Bozkurt Ceyhun,Güler Elif,OZGUVEN ALİ,Erbey Fatih,Berber Hamamcı Melda,Ugur Dincaslan Handan,Unal Emel,Kantar Mehmet Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives. (2020): 1916 - 1921. 10.3906/sag-1911-193
MLA	İNCESOY ÖZDEMİR SONAY,Tacyildiz Nurdan,Varan Ali,Kebudi Rejin,Zulfikar Bulent,CELKAN TÜLIN TIRAJE,SAHIN GÜRSES,corapcioglu funda,Keskin Yildirim Zuhal,Pinarli Faruk Guclu,Olgun Nur,Sarı Neriman,Dağdemir Ayhan,Ozyoruk Derya,Eren Tuba,Cakir Fatma Betul,Adaklı Aksoy Başak,Bozkurt Ceyhun,Güler Elif,OZGUVEN ALİ,Erbey Fatih,Berber Hamamcı Melda,Ugur Dincaslan Handan,Unal Emel,Kantar Mehmet Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives. , 2020, ss.1916 - 1921. 10.3906/sag-1911-193
AMA	İNCESOY ÖZDEMİR S,Tacyildiz N,Varan A,Kebudi R,Zulfikar B,CELKAN T,SAHIN G,corapcioglu f,Keskin Yildirim Z,Pinarli F,Olgun N,Sarı N,Dağdemir A,Ozyoruk D,Eren T,Cakir F,Adaklı Aksoy B,Bozkurt C,Güler E,OZGUVEN A,Erbey F,Berber Hamamcı M,Ugur Dincaslan H,Unal E,Kantar M Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives. . 2020; 1916 - 1921. 10.3906/sag-1911-193
Vancouver	İNCESOY ÖZDEMİR S,Tacyildiz N,Varan A,Kebudi R,Zulfikar B,CELKAN T,SAHIN G,corapcioglu f,Keskin Yildirim Z,Pinarli F,Olgun N,Sarı N,Dağdemir A,Ozyoruk D,Eren T,Cakir F,Adaklı Aksoy B,Bozkurt C,Güler E,OZGUVEN A,Erbey F,Berber Hamamcı M,Ugur Dincaslan H,Unal E,Kantar M Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives. . 2020; 1916 - 1921. 10.3906/sag-1911-193
IEEE	İNCESOY ÖZDEMİR S,Tacyildiz N,Varan A,Kebudi R,Zulfikar B,CELKAN T,SAHIN G,corapcioglu f,Keskin Yildirim Z,Pinarli F,Olgun N,Sarı N,Dağdemir A,Ozyoruk D,Eren T,Cakir F,Adaklı Aksoy B,Bozkurt C,Güler E,OZGUVEN A,Erbey F,Berber Hamamcı M,Ugur Dincaslan H,Unal E,Kantar M "Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives." , ss.1916 - 1921, 2020. 10.3906/sag-1911-193
ISNAD	İNCESOY ÖZDEMİR, SONAY vd. "Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives". (2020), 1916-1921. https://doi.org/10.3906/sag-1911-193

APA	İNCESOY ÖZDEMİR S, Tacyildiz N, Varan A, Kebudi R, Zulfikar B, CELKAN T, SAHIN G, corapcioglu f, Keskin Yildirim Z, Pinarli F, Olgun N, Sarı N, Dağdemir A, Ozyoruk D, Eren T, Cakir F, Adaklı Aksoy B, Bozkurt C, Güler E, OZGUVEN A, Erbey F, Berber Hamamcı M, Ugur Dincaslan H, Unal E, Kantar M (2020). Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives. Turkish Journal of Medical Sciences, 50(8), 1916 - 1921. 10.3906/sag-1911-193
Chicago	İNCESOY ÖZDEMİR SONAY,Tacyildiz Nurdan,Varan Ali,Kebudi Rejin,Zulfikar Bulent,CELKAN TÜLIN TIRAJE,SAHIN GÜRSES,corapcioglu funda,Keskin Yildirim Zuhal,Pinarli Faruk Guclu,Olgun Nur,Sarı Neriman,Dağdemir Ayhan,Ozyoruk Derya,Eren Tuba,Cakir Fatma Betul,Adaklı Aksoy Başak,Bozkurt Ceyhun,Güler Elif,OZGUVEN ALİ,Erbey Fatih,Berber Hamamcı Melda,Ugur Dincaslan Handan,Unal Emel,Kantar Mehmet Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives. Turkish Journal of Medical Sciences 50, no.8 (2020): 1916 - 1921. 10.3906/sag-1911-193
MLA	İNCESOY ÖZDEMİR SONAY,Tacyildiz Nurdan,Varan Ali,Kebudi Rejin,Zulfikar Bulent,CELKAN TÜLIN TIRAJE,SAHIN GÜRSES,corapcioglu funda,Keskin Yildirim Zuhal,Pinarli Faruk Guclu,Olgun Nur,Sarı Neriman,Dağdemir Ayhan,Ozyoruk Derya,Eren Tuba,Cakir Fatma Betul,Adaklı Aksoy Başak,Bozkurt Ceyhun,Güler Elif,OZGUVEN ALİ,Erbey Fatih,Berber Hamamcı Melda,Ugur Dincaslan Handan,Unal Emel,Kantar Mehmet Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives. Turkish Journal of Medical Sciences, vol.50, no.8, 2020, ss.1916 - 1921. 10.3906/sag-1911-193
AMA	İNCESOY ÖZDEMİR S,Tacyildiz N,Varan A,Kebudi R,Zulfikar B,CELKAN T,SAHIN G,corapcioglu f,Keskin Yildirim Z,Pinarli F,Olgun N,Sarı N,Dağdemir A,Ozyoruk D,Eren T,Cakir F,Adaklı Aksoy B,Bozkurt C,Güler E,OZGUVEN A,Erbey F,Berber Hamamcı M,Ugur Dincaslan H,Unal E,Kantar M Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives. Turkish Journal of Medical Sciences. 2020; 50(8): 1916 - 1921. 10.3906/sag-1911-193
Vancouver	İNCESOY ÖZDEMİR S,Tacyildiz N,Varan A,Kebudi R,Zulfikar B,CELKAN T,SAHIN G,corapcioglu f,Keskin Yildirim Z,Pinarli F,Olgun N,Sarı N,Dağdemir A,Ozyoruk D,Eren T,Cakir F,Adaklı Aksoy B,Bozkurt C,Güler E,OZGUVEN A,Erbey F,Berber Hamamcı M,Ugur Dincaslan H,Unal E,Kantar M Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives. Turkish Journal of Medical Sciences. 2020; 50(8): 1916 - 1921. 10.3906/sag-1911-193
IEEE	İNCESOY ÖZDEMİR S,Tacyildiz N,Varan A,Kebudi R,Zulfikar B,CELKAN T,SAHIN G,corapcioglu f,Keskin Yildirim Z,Pinarli F,Olgun N,Sarı N,Dağdemir A,Ozyoruk D,Eren T,Cakir F,Adaklı Aksoy B,Bozkurt C,Güler E,OZGUVEN A,Erbey F,Berber Hamamcı M,Ugur Dincaslan H,Unal E,Kantar M "Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives." Turkish Journal of Medical Sciences, 50, ss.1916 - 1921, 2020. 10.3906/sag-1911-193
ISNAD	İNCESOY ÖZDEMİR, SONAY vd. "Cross-sectional study: long term follow-up care for pediatric cancer survivors in a developing country, Turkey: current status, challenges, and future perspectives". Turkish Journal of Medical Sciences 50/8 (2020), 1916-1921. https://doi.org/10.3906/sag-1911-193