TY  - JOUR
TI  - Cross-sectional study: long term follow-up care for pediatric cancer survivors in a
developing country, Turkey: current status, challenges, and future perspectives
AB  - Aim: The main purpose of this study is to determine the current status of long-term follow-up (LTFU) for childhood cancer survivors
and the challenges of LTFU for pediatric cancer survivors at pediatric oncology institutions in Turkey.
Material and methods: A questionnaire was e-mailed to the directors of 33 pediatric oncology centers (POCs) registered in the Turkish
Pediatric Oncology Group (TPOG). Of these 33 active TPOG institutions, 21 participated in the study and returned their completed
questionnaires.
Results: Only 1 of the 21 participating centers had a separate LTFU clinic. The remaining centers provided LTFU care for childhood
cancer survivors at the pediatric oncology outpatient clinic. Of these centers, 17 (80.9%) reported difficulty in transition from the
pediatric clinic to the adult clinic, 14 (66.6%) reported insufficient care providers, and 12 (57.1%) reported insufficient time and
transportation problems. As neglected late effects, 16 (76.1%) centers reported psychosocial and getty job problems and 11 (52.3%)
reported sexual and cognitive problems. None of the centers had their own LTFU guidelines for their daily LTFU practice.
Conclusion: This study was the first to gain an overview of the needs of POCs and the gaps in survivorship services in Turkey. The
results from this study will help to develop a national health care system and national guidelines for pediatric cancer survivors.
AU  - Güler, Elif
AU  - Tacyildiz, Nurdan
AU  - Unal, Emel
AU  - Keskin Yildirim, Zuhal
AU  - OZGUVEN, ALİ
AU  - Kantar, Mehmet
AU  - Zulfikar, Bulent
AU  - Kebudi, Rejin
AU  - CELKAN, TÜLIN TIRAJE
AU  - Bozkurt, Ceyhun
AU  - Olgun, Nur
AU  - Berber Hamamcı, Melda
AU  - Ugur Dincaslan, Handan
AU  - Pinarli, Faruk Guclu
AU  - corapcioglu, funda
AU  - Varan, Ali
AU  - Ozyoruk, Derya
AU  - SAHIN, GÜRSES
AU  - Eren, Tuba
AU  - Cakir, Fatma Betul
AU  - İNCESOY ÖZDEMİR, SONAY
AU  - Sarı, Neriman
AU  - Dağdemir, Ayhan
AU  - Erbey, Fatih
AU  - Adaklı Aksoy, Başak
DO  - 10.3906/sag-1911-193
PY  - 2020
JO  - Turkish Journal of Medical Sciences
VL  - 50
IS  - 8
SN  - 1300-0144
SP  - 1916
EP  - 1921
DB  - TRDizin
UR  - http://search/yayin/detay/535714
ER  -