İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri

Özkan, Mine; KOCAMAN YILDIRIM, Nazmiye; KAÇMAZ, Nesiba

İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri

Nazmiye KOCAMAN YILDIRIM, (İstanbul Üniversitesi İstanbul Tıp Fakültesi, Konsültasyon Liyezon Psikiyatrisi Bilim Dalı, İstanbul)

Nesiba KAÇMAZ, (İstanbul Üniversitesi İstanbul Tıp Fakültesi, Konsültasyon Liyezon Psikiyatrisi Bilim Dalı, İstanbul)

Mine ÖZKAN (İstanbul Üniversitesi İstanbul Tıp Fakültesi, Konsültasyon Liyezon Psikiyatrisi Bilim Dalı, İstanbul)

Psikiyatri Hemşireliği Dergisi

19 1

Yıl: 2013 Cilt: 4 Sayı: 3 Sayfa Aralığı: 153 - 158 Metin Dili: Türkçe İndeks Tarihi: 29-07-2022

İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri

Öz:

Geliştirilen erken tanı ve tedavi yöntemleri kanserli hastaların sağkalımınakatkı sağlamakla birlikte, hastaların tümü küratif tedavi edilememektedir.Bu grup literatürde "ileri evre, nüks, metastaz (advanced)" ve " tedavi edilemez(incurable)" kanserler olarak belirtilmiştir. Mevcut sağlık sistemindeilerlemiş kanser hastalarının orta veya yüksek düzeyde karşılanmamışgereksinimleri ve problemleri olduğu gösterilmiştir. Bakım gereksinimlerive problemleri fiziksel, bilgi, iletişim, psikolojik, cinsel, sosyal, finansal vespiritüel alanları içerir. Karşılanmamış gereksinimler yaşam kalitesinin vehasta memnuniyetinin azalmasıyla ilişkilidir. Ülkemizde palyatif bakımhizmeti yaygınlaştırılma yolundadır. İleri evre, nüks veya metastaz saptananyetişkin hastaların bakımında yol gösterici olabilecek bu derleme,hastaların gereksinimlerini, hangi gereksinimlerin ne oranda karşılanmadığınıincelemek amacıyla hazırlanmıştır.

Anahtar Kelime:

Konular: Onkoloji

Unmet Care Needs in Advanced Stage Cancer Patients

Öz:

While earlier diagnoses and newly developed treatment methods contributeto the increased survival rates of cancer patients, not all patients canbe treated curatively. Patients who cannot be treated curatively are definedas those who have advanced stage, recurrent, metastatic and incurablecancers. It has been observed that advanced stage cancer patients havemedium to high levels of unmet needs and have many problems in the currenthealth care system. These include insufficient informational needs aswell as unmet physical, psychological, sexual, social, financial and spiritualaspects of care. Unmet needs are associated with decreases in quality of lifeand patient satisfaction. Research has shown that palliative care servicesare on the verge of growing rapidly in Turkey. The current review aims toidentify health care needs and the proportion of these that are unmet inadult cancer patients with advanced stage, recurrent or metastasized cancer.This review may serve as a guide for the care of such patients.

Anahtar Kelime:

Konular: Onkoloji

Belge Türü: Makale Makale Türü: Derleme Erişim Türü: Erişime Açık

1. Rainbird K, Perkins J, Sanson-Fisher R, Rolfe I, et al. The needs of patients with advanced, incurable cancer. Br J Cancer 2009;101:759-64.
2. Harrison JD, Young JM, Price MA, Butow PN, et al. What are the unmet supportive care needs of people with cancer? A systematic review. Support Care Cancer 2009;17:1117-28.
3. Osse BH, Vernooij-Dassen MJ, Schadé E, Grol RP. The problems experienced by patients with cancer and their needs for palliative care. Support Care Cancer 2005;13:722-32.
4. Peppercorn JM, Smith TJ, Helft PR, Debono DJ, et al. American society of clinical oncology statement: toward individualized care for patients with advanced cancer. J Clin Oncol 2011;29:755-60.
5. Elçigil A. Palyatif bakım hemşireliği. Gülhane Tıp Dergisi 2012;54:329-34 . 6. Kabalak AA, Öztürk H, Erdem T, Akın S. S.B. Ulus Devlet Hastanesi’nde kapsamlı palyatif bakım merkezi uygulaması. Çağdaş Tıp Dergisi 2012;2:122-6.
7. Bahti T. Coping issues among people living with advanced cancer. Semin Oncol Nurs 2010;26:175-82.
8. Richardson A, Medina J, Brown V, Sitzia J. Patients’ needs assessment in cancer care: a review of assessment tools. Support Care Cancer 2007;15:1125-44.
9. Osse BH, Vernooij-Dassen MJ, de Vree BP, Schadé E, et al. Assessment of the need for palliative care as perceived by individual cancer patients and their families: a review of instruments for improving patient participation in palliative care. Cancer 2000;88:900-11.
10. Uchida M, Akechi T, Okuyama T, Sagawa R, et al. Patients’ supportive care needs and psychological distress in advanced breast cancer patients in Japan. Jpn J Clin Oncol 2011;41:530-6.
11. Waller A, Girgis A, Johnson C, Lecathelinais C, et al. Improving outcomes for people with progressive cancer: interrupted time series trial of a needs assessment intervention. J Pain Symptom Manage 2012;43:569-81.
12. Haylock PJ. Advanced cancer: a mind-body-spirit approach to life and living. Semin Oncol Nurs 2010;26:183-94.
13. Hwang SS, Chang VT, Cogswell J, Alejandro Y, et al. Study of unmet needs in symptomatic veterans with advanced cancer: incidence, independent predictors and unmet needs outcome model. J Pain Symptom Manage 2004;28:421-32.
14. Wen KY, Gustafson DH. Needs assessment for cancer patients and their families. Health Qual Life Outcomes 2004;2:11.
15. Çatal E, Dicle A. Hasta öğrenim gereksinimleri ölçeği’nin Türkiye’de geçerlik ve güvenirlik çalışması. Dokuz Eylül Üniversitesi Hemşirelik Yüksekokulu Dergisi 2008;1:19-32.
16. Aslan G, Çeber E. Information and support needs of women with primary relatives with breast cancer. The Journal of Breast Health 2011;7:15-21.
17. Tsai JS, Wu CH, Chiu TY, Chen CY. Significance of symptom clustering in palliative care of advanced cancer patients. J Pain Symptom Manage 2010;39:655-62.
18. Solano JP, Gomes B, Higginson IJ. A comparison of symptom prevalence in far advanced cancer, AIDS, heart disease, chronic obstructive pulmonary disease and renal disease. J Pain Symptom Manage 2006;31:58-69.
19. van den Beuken-van Everdingen MH, de Rijke JM, Kessels AG, Schouten HC, et al. Prevalence of pain in patients with cancer: a systematic review of the past 40 years. Ann Oncol 2007;18:1437-49.
20. Yamagishi A, Morita T, Miyashita M, Igarashi A, et al. Pain intensity, quality of life, quality of palliative care, and satisfaction in outpatients with metastatic or recurrent cancer: a Japanese, nationwide, region-based, multicenter survey. J Pain Symptom Manage 2012;43:503-14.
21. Hauser K, Walsh D, Rybicki LA, Davis MP, et al. Fatigue in advanced cancer: a prospective study. Am J Hosp Palliat Care 2008;25:372-8.
22. Okuyama T, Akechi T, Shima Y, Sugahara Y, et al. Factors correlated with fatigue in terminally ill cancer patients: a longitudinal study. J Pain Symptom Manage 2008;35:515-23.
23. Spichiger E, Müller-Fröhlich C, Denhaerynck K, Stoll H, et al. Prevalence and contributors to fatigue in individuals hospitalized with advanced cancer: a prospective, observational study. Int J Nurs Stud 2012;49:1146- 54.
24. Karadağ F, Gülen ŞT, Ceylan E, Karul AB. İleri evre akciğer kanseri olgularında yorgunluk ve güçsüzlükle ilişkili faktörler. Solunum 2012;14:27-33.
25. Poole K, Froggatt K. Loss of weight and loss of appetite in advanced cancer: a problem for the patient, the carer, or the health professional? Palliat Med 2002;16:499-506.
26. Hopkinson JB, Wright DN, McDonald JW, Corner JL. The prevalence of concern about weight loss and change in eating habits in people with advanced cancer. J Pain Symptom Manage 2006;32:322-31.
27. Hawkins C. Anorexia and anxiety in advanced malignancy: the relative problem. J Hum Nutr Diet 2000;13:113-7.
28. Rhondali W, Nguyen L, Palmer L, Kang DH, et al. Self-reported constipation in patients with advanced cancer: a preliminary report. J Pain Symptom Manage 2013;45:23-32.
29. Delgado-Guay M, Yennurajalingam S, Parsons H, Palmer JL, et al. Association between self-reported sleep disturbance and other symptoms in patients with advanced cancer. J Pain Symptom Manage 2011;41:819-27.
30. Sela RA, Watanabe S, Nekolaichuk CL. Sleep disturbances in palliative cancer patients attending a pain and symptom control clinic. Palliat Support Care 2005;3:23-31.
31. Gibbins J, McCoubrie R, Kendrick AH, Senior-Smith G, et al. Sleep-wake disturbances in patients with advanced cancer and their family carers. J Pain Symptom Manage 2009;38:860-70.
32. Mystakidou K, Parpa E, Tsilika E, Gennatas C, et al. How is sleep quality affected by the psychological and symptom distress of advanced cancer patients? Palliat Med 2009;23:46-53.
33. Hugel H, Ellershaw JE, Cook L, Skinner J, et al. The prevalence, key causes and management of insomnia in palliative care patients. J Pain Symptom Manage 2004;27:316-21.
34. Shell JA. Sexual issues in the palliative care population. Semin Oncol Nurs 2008;24:131-4.
35. Rowland J. In sickness and in health: The impact of illness on couples’ relationships. J Marital Fam Ther 1994;20:327-32.
36. Spaulding S. No patient assessment is complete without asking one simple question. ONS News 2006;21:6.
37. Marcusen C. Information and communication needs of individuals living with advanced cancer. Semin Oncol Nurs 2010;26:151-6.
38. Greenwald HP, Nevitt MC. Physician attitudes toward communication with cancer patients. Soc Sci Med 1982;16:591-4.
39. Siminoff LA, Zyzanski SJ, Rose JH, Zhang AY. The Cancer Communication Assessment Tool for Patients and Families (CCAT-PF): a new measure. Psychooncology 2008;17:1216-24.
40. Russell BJ, Ward AM. Deciding what information is necessary: do patients with advanced cancer want to know all the details? Cancer Manag Res 2011;3:191-9.
41. Aranda S, Schofield P, Weih L, Yates P, et al. Mapping the quality of life and unmet needs of urban women with metastatic breast cancer. Eur J Cancer Care (Engl) 2005;14:211-22.
42. Hürny C. Do patients with advanced cancer get appropriate information? Support Care Cancer 2002;10:383-4.
43. Wong RK, Franssen E, Szumacher E, Connolly R, et al. What do patients living with advanced cancer and their carers want to know? - a needs assessment. Support Care Cancer 2002;10:408-15.
44. McInnes DK, Cleary PD, Stein KD, Ding L, et al. Perceptions of cancer-related information among cancer survivors: a report from the American Cancer Society’s Studies of Cancer Survivors. Cancer 2008;113:1471-9.
45. Blackhall LJ, Murphy ST, Frank G, Michel V, et al. Ethnicity and attitudes toward patient autonomy. JAMA 1995;274:820-5.
46. Kavlak O, Ertem G, Sevil Ü. Kanserli hastalara bakım veren hemşirelerin kanserli hastalara doğruyu söyleme konusundaki tutumları. Türkiye Klinikleri J Med Ethics 2008;16:1-7.
47. Özışık, Arslan, Oruç, Saraç, Tüzün, Yurteri ve ark. Hekimlerin bakış açısından akciğer kanserinde bir ikilem: Tanı hastaya söylenmeli mi? Solunum 2006;8:102-8.
48. Koedoot CG, Oort FJ, de Haan RJ, Bakker PJ, et al. The content and amount of information given by medical oncologists when telling patients with advanced cancer what their treatment options are. palliative chemotherapy and watchful-waiting. Eur J Cancer 2004;40:225-35.
49. Butow PN, Kazemi JN, Beeney LJ, Griffin AM, et al. When the diagnosis is cancer: patient communication experiences and preferences. Cancer 1996;77:2630-7.
50. Bruera E, Neumann CM, Mazzocato C, Stiefel F, et al. Attitudes and beliefs of palliative care physicians regarding communication with terminally ill cancer patients. Palliat Med 2000;14:287-98.
51. Keating NL, Landrum MB, Rogers SO Jr, Baum SK, et al. Physician factors associated with discussions about end-of-life care. Cancer 2010;116:998- 1006.
52. Voogt E, van der Heide A, van Leeuwen AF, Visser AP, et al. Positive and negative affect after diagnosis of advanced cancer. Psychooncology 2005;14:262-73.
53. Maguire R, Papadopoulou C, Kotronoulas G, Simpson MF, et al. A systematic review of supportive care needs of people living with lung cancer. Eur J Oncol Nurs 2013;17:449-64.
54. Irving G, Lloyd-Williams M. Depression in advanced cancer. Eur J Oncol Nurs 2010;14:395-9.
55. Potash M, Breitbart W. Affective disorders in advanced cancer. Hematol Oncol Clin North Am 2002;16:671-700.
56. Aydın O, Deveci A, Esen-Danacı A. Kanser tanısı intihara yol açar mı? Risk algılama ve azaltımı nasıl yapılabilir? Üroonkoloji Bülteni 2012;11:311-5.
57. Puchalski CM. Spirituality in the cancer trajectory. Ann Oncol 2012;23 Suppl 3:49-55.
58. Balboni TA, Vanderwerker LC, Block SD, Paulk ME, et al. Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life. J Clin Oncol 2007;25:555-60.
59. Sharma RK, Astrow AB, Texeira K, Sulmasy DP. The Spiritual Needs Assessment for Patients (SNAP): development and validation of a comprehensive instrument to assess unmet spiritual needs. J Pain Symptom Manage 2012;44:44-51.
60. Moadel A, Morgan C, Fatone A, Grennan J, et al. Seeking meaning and hope: self-reported spiritual and existential needs among an ethnicallydiverse cancer patient population. Psychooncology 1999;8:378-85.
61. O’Connor AP, Wicker CA, Germino BB. Understanding the cancer patient’s search for meaning. Cancer Nurs 1990;13:167-75.
62. Ramfelt E, Severinsson E, Lützén K. Attempting to find meaning in illness to achieve emotional coherence: the experiences of patients with colorectal cancer. Cancer Nurs 2002;25:141-9.
63. Taylor C. Patients’ experiences of ‘feeling on their own’ following a diagnosis of colorectal cancer: a phenomenological approach. Int J Nurs Stud 2001;38:651-61.
64. Hampton DM, Hollis DE, Lloyd DA, Taylor J, et al. Spiritual needs of persons with advanced cancer. Am J Hosp Palliat Care 2007;24:42-8.
65. Hsiao SM, Gau ML, Ingleton C, Ryan T, et al. An exploration of spiritual needs of Taiwanese patients with advanced cancer during the therapeutic processes. J Clin Nurs 2011;20:950-9.
66. Lin HR, Bauer-Wu SM. Psycho-spiritual well-being in patients with advanced cancer: an integrative review of the literature. J Adv Nurs 2003;44:69-80.
67. Selman L, Harding R, Gysels M, Speck P, et al. The measurement of spirituality in palliative care and the content of tools validated cross-culturally: a systematic review. J Pain Symptom Manage 2011;41:728-53.

APA	KOCAMAN YILDIRIM N, KAÇMAZ N, Özkan M (2013). İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri. , 153 - 158.
Chicago	KOCAMAN YILDIRIM Nazmiye,KAÇMAZ Nesiba,Özkan Mine İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri. (2013): 153 - 158.
MLA	KOCAMAN YILDIRIM Nazmiye,KAÇMAZ Nesiba,Özkan Mine İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri. , 2013, ss.153 - 158.
AMA	KOCAMAN YILDIRIM N,KAÇMAZ N,Özkan M İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri. . 2013; 153 - 158.
Vancouver	KOCAMAN YILDIRIM N,KAÇMAZ N,Özkan M İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri. . 2013; 153 - 158.
IEEE	KOCAMAN YILDIRIM N,KAÇMAZ N,Özkan M "İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri." , ss.153 - 158, 2013.
ISNAD	KOCAMAN YILDIRIM, Nazmiye vd. "İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri". (2013), 153-158.

APA	KOCAMAN YILDIRIM N, KAÇMAZ N, Özkan M (2013). İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri. Psikiyatri Hemşireliği Dergisi, 4(3), 153 - 158.
Chicago	KOCAMAN YILDIRIM Nazmiye,KAÇMAZ Nesiba,Özkan Mine İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri. Psikiyatri Hemşireliği Dergisi 4, no.3 (2013): 153 - 158.
MLA	KOCAMAN YILDIRIM Nazmiye,KAÇMAZ Nesiba,Özkan Mine İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri. Psikiyatri Hemşireliği Dergisi, vol.4, no.3, 2013, ss.153 - 158.
AMA	KOCAMAN YILDIRIM N,KAÇMAZ N,Özkan M İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri. Psikiyatri Hemşireliği Dergisi. 2013; 4(3): 153 - 158.
Vancouver	KOCAMAN YILDIRIM N,KAÇMAZ N,Özkan M İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri. Psikiyatri Hemşireliği Dergisi. 2013; 4(3): 153 - 158.
IEEE	KOCAMAN YILDIRIM N,KAÇMAZ N,Özkan M "İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri." Psikiyatri Hemşireliği Dergisi, 4, ss.153 - 158, 2013.
ISNAD	KOCAMAN YILDIRIM, Nazmiye vd. "İleri Evre Kanser Hastalarının Karşılanmamış Bakım Gereksinimleri". Psikiyatri Hemşireliği Dergisi 4/3 (2013), 153-158.